Volume 5(3); 2020

Population Data Science

Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales

Julia Townson, Jan Davies, Lisa Hurt, Pauline Ashfield-Watt, Shantini Paranjothy

Int J Popul Data Sci. 2020; 5(3): 1356. Published online 2020 Apr 16. doi: 10.23889/ijpds.v5i3.1356

PMCID:: PMC8110888

Article PDF–553K

Public involvement and engagement in primary and emergency care research: the story from PRIME Centre Wales

Bridie Angela Evans, John Gallanders, Lesley Griffiths, Robert Harris-Mayes, Mari James, Sian Jones, Natalie Joseph-Williams, Mary Nettle, Martin Rolph, Helen Snooks, Carolyn Wallace, Adrian Edwards, on behalf of the SUPER group and PRIME Centre Wales

Int J Popul Data Sci. 2020; 5(3): 1363. Published online 2020 Sep 30. doi: 10.23889/ijpds.v5i3.1363

PMCID:: PMC7894248

Article PDF–1.5M

Public engagement can change your research, but how can it change your research institution? ICES case study

Jenine Paul, Randy Davidson, Cheryl Johnstone, Margaret Loong, John Matecsa, Astrid Guttmann, Michael J. Schull

Int J Popul Data Sci. 2020; 5(3): 1364. Published online 2020 Sep 30. doi: 10.23889/ijpds.v5i3.1364

PMCID:: PMC8110891

Article PDF–583K

Involving service users in the Birth Timing project, a data linkage study analysing the timing of births and their outcomes

Mary Newburn, Miranda Scanlon, Rachel Plachcinski, Alison Jill Macfarlane

Int J Popul Data Sci. 2020; 5(3): 1366. Published online 2020 Nov 2. doi: 10.23889/ijpds.v5i3.1366

PMCID:: PMC8121135

Article PDF–2.5M

A framework for centering racial equity throughout the administrative data life cycle

Dr. Amy L. Hawn Nelson, Sharon Zanti

Int J Popul Data Sci. 2020; 3(5): 1367. Published online 2020 Sep 30. doi: 10.23889/ijpds.v3i5.1367

PMCID:: PMC8110889

Article PDF–350K

Trust, security and public interest: striking the balance A narrative review of previous literature on public attitudes towards the sharing, linking and use of administrative data for research

Elizabeth Waind

Int J Popul Data Sci. 2020; 5(3): 1368. Published online 2020 Dec 11. doi: 10.23889/ijpds.v5i3.1368

PMCID:: PMC8127133

Article PDF–355K

Impact through engagement: Co-production of administrative data research and the approach of the Administrative Data Research Centre Northern Ireland

Elizabeth Nelson, Frances Burns

Int J Popul Data Sci. 2020; 5(3): 1369. Published online 2020 Nov 10. doi: 10.23889/ijpds.v5i3.1369

PMCID:: PMC8104064

Article PDF–758K

Linking pre- and post-adoption records for research in anonymised form in a data safe haven: legal implications and support for a social licence

Kerina Jones, Sharon Heys, Rachel Thompson, David Ford, Lucy Griffiths, Rhodri Johnson, Alex Lee, Karen Broadhurst

Int J Popul Data Sci. 2020; 5(3): 1370. Published online 2020 Oct 23. doi: 10.23889/ijpds.v5i3.1370

PMCID:: PMC8110886

Article PDF–362K

Public involvement & engagement in the work of a data safe haven: a case study of the SAIL Databank

Kerina H Jones, Sharon Heys, Rachel Thompson, Lynsey Cross, David Ford

Int J Popul Data Sci. 2020; 5(3): 1371. Published online 2020 Aug 24. doi: 10.23889/ijpds.v5i3.1371

PMCID:: PMC7893854

Article PDF–551K

Pivoting data and analytic capacity to support Ontario’s COVID-19 response

Hannah Chung, Mahmoud Azimaee, Susan E. Bronskill, Rosario Cartagena, Astrid Guttmann, Minnie M. Ho, Lisa Ishiguro, Jeffrey C. Kwong, J. Michael Paterson, Sujitha Ratnasingham, Laura C. Rosella, Michael J. Schull, Marian J. Vermeulen, J. Charles Victor

Int J Popul Data Sci. 2020; 5(3): 1682. Published online 2022 Jan 18. doi: 10.23889/ijpds.v5i4.1682

PMCID:: PMC8785247

Article PDF–2.5M

Participant acceptability of digital footprint data collection strategies: an exemplar approach to participant engagement and involvement in the ALSPAC birth cohort study

Kate Shiells, Nina Di Cara, Anya Skatova, Oliver S.P. Davis, Claire M.A. Haworth, Andy L. Skinner, Richard Thomas, Alastair R. Tanner, John Macleod, Nicholas J. Timpson, Andy Boyd

Int J Popul Data Sci. 2020; 5(3): 1728. Published online 2022 Mar 16. doi: 10.23889/ijpds.v5i3.1728

PMCID:: PMC9053133

Article PDF–970K

Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus groups

Elizabeth Ford, Melanie Rees-Roberts, Kathryn Stanley, Katie Goddard, Sarah Giles, Jo Armes, Deborah Ikhile, Anotida Madzvamuse, Victoria Spencer-Hughes, Abraham George, Chris Farmer, Jackie Cassell

Int J Popul Data Sci. 2020; 5(3): 2114. Published online 2023 Jan 30. doi: 10.23889/ijpds.v5i3.2114

PMCID:: PMC10476239

Article PDF–1.6M

Public Involvement & Engagement in health inequalities research on COVID-19 pandemic: a case study of CIDACS/FIOCRUZ BAHIA

Adalton dos Anjos Fonseca, Denise Moraes Pimenta, Mariana Rodrigues Sebastião de Almeida, Raiza Tourinho Lima, Mauricio Lima Barreto, Maria Yury Travassos Ichihara

Int J Popul Data Sci. 2020; 5(4): 2133. Published online 2023 Jun 6. doi: 10.23889/ijpds.v5i3.2133

PMCID:: PMC10476697

Article PDF–1.8M

Article

Community Priority setting for Fetal Alcohol Spectrum Disorder Research in Australia

A Finlay-Jones, M Symons, W Tsang, R Mullan, H Jones, A McKenzie, Reibel, L Cannon, B Birda, N Reynolds, P Sargent, H Gailes, D Mayers, EJ Elliott, C Bower

Int J Popul Data Sci. 2020; 5(3): 1359. Published online 2020 Dec 10. doi: 10.23889/ijpds.v5i3.1359

PMCID:: PMC8130797

Article PDF–599K

Articles from International Journal of Population Data Science are provided here courtesy of Swansea University